Limited

The other night I was talking to Ted about my blog.  I was saying that the blog is many things to me, but most importantly, it is a space to remember Max. "You should write more about him then.", he said.  "What else is there to write?", I said.  "I've already shared most of my memories and the rest of them are drying up".....which is the most horrific part of it all.  There are things that I can't remember as well and I think that is just going to get worse as time moves on.  Ted isn't the first one to say this. 

I used to get emails all of the time saying, "Post more photos and stories of Max".  I'm not sure where I lost everyone.  I don't have more photos and stories.  My memories of Max are limited. I can only tell you all so many times how happy he was, how I loved carrying him around in the Baby Bjorn, how he babbled whenever he woke up in the morning or from a nap, and how he always smiled when we came into his room to get him. I also only have so many photos - nine and a half months worth. I wish I had taken more, but I didn't know he was going to stop breathing at daycare and leave our lives forever. I can't write more because there aren't more memories to write.  I can't write about who he was other than to say, he was very special and loved.  He wasn't old enough to tell me his hopes and dreams. He never told me which friends he liked best or how much he loved me. He never said one word.  You see, and I know you must know this, I don't have anymore photos or memories because I only had him for nine and a half months.

That's the point - this blog in many ways is about what we don't have, what he will never have. When I write "about Max" it is often abstract.  It to say that what I have of him now are a few memories and a huge void.  My hope is that despite that, you can understand how special he was by listening to us tell you what a gigantic hole he left in our hearts.  The point is - I don't have the luxury that most parents have to post new photos and funny stories everyday. I am just hoping that you will trust me enough to know that he was cute, and funny, and easy going, and delicious and that he was our everything. Honestly, I would love to post new stories and photos, but if I had those, it would be because I had Max and then I wouldn't even need this blog.

It's true that even to me, my blog seems pretty narcissistic.  A long list of ways that my life is hard - all connected to the loss of my child.  But, this is all I have.  This is all I can share with you.  This is what connects me to Max....and I hate it.


Sleep, Dream, Repeat

I am one of those people who always remembers their dreams.  This used to be so interesting when I was younger because every single night was like a new adventure in my head.  These days, not so much.  And, I shouldn't even complain because for a while, all I had were gut wrenching nightmares, which I rarely have anymore.  These days, I literally have the same three dreams over and over and over.  I know my brain is trying to work something out, but I have no idea what it is.  These are the basic frameworks of my three dreams:

1) I am married to someone who isn't Ted who I feel lukewarm about.  He is fine.  Nice person.  We don't have a lot of chemistry but we seem to have a nice enough family.  We like each other, even if we aren't really in love.  In the back of my mind, I have a faint memory of being married to someone else who is the yin to my yang - someone that I am ga ga about.  I wake up and see Ted sleeping next to me and breathe a sigh of relief.

2) I am in Costa Rica on vacation with friends with the intention of staying at my house.  When I get there, I realize that I never told anyone that I was coming and so my house is rented out and we end up staying down the road at some kind of a youth hostel.  The trip is fine but totally unfamiliar and strange.  We go do fun stuff but we hang out on a different beach, we go out to different places I have never been to and we don't see anyone I know.  It is fine, just not "my" Costa Rica.

3) I enter a vortex where time and space don't matter at all and the landscape is the combination of Costa Rica, my Jewish summer camp, and my kibbutz in Israel.  I am confused about who to look for first because they are all in a mish mash.  My room on the kibbutz is in the middle of the younger kids cabins at camp and all I really want to do is go swimming in the Costa Rica Ocean.  Nothing happens at all - I am just surrounded by familiar places but feel totally out of place in all of them.

What makes me crazy is that there is only ONE thing that I want to dream about - MAX - and I almost never do.  Once in a while, he is a background character.  Like, in the dream where I am married to some guy - Max is one of our children and the story of his life is definitely there.  But, I don't get to interact with him at all, other than to maybe know he is around.

After he died, I had many dreams about Max - but they were horrific.  I've written about some of them here- but not all.  Some were too awful to ever recount.

And, then - there was that one dream.  The dream that I beg to have again every night before I got to sleep. The one where he was mine again.  I could smell his sweet baby smell, I could kiss his chubby soft cheeks, I could hug him and feel him in my arms.  He was mine.  He was here.  He was alive.  And, it was SO SO real.  Instead, I am stuck with these same three other dreams night in and night out.

Sleep, Dream, Repeat. 

Milk

Ya. We aren't working on giving up the bottle. He likes it too much.

Photo courtesy of Greg "Helldog" Heller

Nothing funny

My sense of humor sometimes borders on the inappropriate. Sometimes my inappropriate jokes can crack up a whole room, other times they bomb hard and I just try to convince myself that it wasn't as bad as I think.  I think I am known for my inappropriate humor in some circles.  Many years ago, I sent an inappropriate joke to a friend by email who must have then forwarded it to others.  A day or so later, the joke got back to me from this friends mother with a very disapproving "Some people never change" that was clearly meant for her daughter (about me).  This was in the days before parents really knew how to use email and the internet.  She hadn't intended for me to see her email, and still, I was mortified. 

In the days after losing Maxie, I was out of my mind.  I cracked jokes and laughed at other people's jokes and stories to keep sane.  When I think about the fact that I found anything to laugh about - I am beyond mortified.  My son had just died.  My whole purpose in life was now gone.  I would never be the same.  As far as I could tell, nothing would really ever be funny again.  I was secretly/not so secretly wishing I were dead too. Still I felt desperate to laugh.  

I remember a friend I hadn't seen in years showed up to Maxie's shiva. I made a big deal about him being there and teased him about being too cool for school.  I think I just wanted to try and take the focus off why he was there.  The idea was making my insides turn.  

At my mom's house after Maxie's funeral, I stood in her livingroom for hours watching a slide show of Maxie's life roll by.  I couldn't tear my eyes off the screen.  I was describing all of the moments of his life to everyone who was standing nearby.  Suddenly, a photo of Max with a nylon sock over his whole head appeared on the screen.  He looked like a little bank robber.  It had been taken at the clinic where he got his helmet.  He had to wear it  so that they could scan the shape of his head, without hair getting in the way.  Taken out of context, it is a very strange photo.  In the context if his funeral, I felt shocked - and very embarrassed.


I was stunned to see it and didn't know how to describe it and instead of explaining I said, "I guess none of you are wondering anymore how I ended up with a dead baby".  When I think about saying that, I want to bury my head in the sand forever.  It was just weird.....and so was I.  Completely out of body.  In total disbelief that I was really watching photos of my child's entire life flash by while standing around at his wake.  How can anyone who was standing there ever understand - I barely do.

I am sure there were many other things I said that were completely crazy and disconnected but I have no recollection of most of it.  I was desperate for normalcy but there was nothing normal about the situation. Nothing at all.  It all goes against the laws of nature.  I was not cut out for this life.

Sometimes I crack jokes at the inappropriate time because I am uncomfortable.  Sometimes I crack inappropriate jokes because I am trying to lighten the mood.  Sometimes I crack jokes because I actually think what I have to say is funny.  But, in those days after Maxie's death, I think I just didn't know what to say to anyone.  I was pretty sure that I had fallen into a rabbit hole and that there was no future that made sense for me ahead.  Truth is that there wasn't....for a long, long time.  There is nothing funny about any of it and if you happened to be standing next to me at my mother's house after Maxie's funeral, I hope you can now understand that I wasn't really trying to be funny. What I really wanted was to disappear with my child.....and still sometimes do.  

They say some people never change, but you have to believe me when I tell you, nothing about me will ever be the same.



Thank you

I loved all of the comments I received yesterday and I am so glad you shared with me.  It makes me feel good to know that there are people who can relate to what I am saying or who just are reading because they care.  Thank you.  What's really funny is that I tried to write back to a number of commenters and my comments didn't publish!  Oy, I guess my blog isn't as user friendly as I would like!  Every so often I get emails from friends that start with "I tried to comment on your blog and couldn't".  I am not sure why it is so difficult since I am just using the very basic and standard version of blogger.  For a while I used Disqus to moderate and facilitate comment posting, but that became difficult for some people as well.  I am working on an overhaul of my blog.  If anyone has any suggestions about a more user friendly site or a better way to manage comments, please let me know!  Anyway, more importantly, thank you for letting me know that you are reading!  It means a lot to me!

AND - it looks like I accidentally downloaded some sort of virus onto my computer yesterday that is inserting advertisements into my posts!  AHHH!  Awful!  Don't click on them!  Sorry

Maybe

Sometimes people act embarrassed to tell me that they read my blog.  I'm not sure why.  I WANT you to read my blog.  That is why I am writing it.  I often feel down about my blog because it seems like nobody is reading it.  I have very few "followers" and don't get many comments.  I compare these stats to the other blogs I read and I feel inadequate and wonder why I am still writing.  Then I look at the number of page views and the number of places around the US and the world that people are reading from and I feel a little better.

When I think out loud about trying to improve the visibility of my blog, people wonder why.  Why on earth would I want people - especially non-grievers - to read my blog.  Do I think that my life is so interesting?  Do I really want to share all of my ups and downs with everyone who might happen upon my online journal? 

The answer is more complicated than you think - and it is both yes and no.

I 100% know that my life isn't interesting.  In many ways, it is a typical life with a small child.  We are home a lot.  Sometimes we go to the park or on other outings.  Occasionally, we visit family or friends or take a vacation.  I don't blog because I think my life is so cool.  Not at all.  I continue to blog because I believe that my thoughts, my experiences, my challenges, obstacles, upsets, and triumphs are very typical of a parent in grief.

My intentions are to advocate for the bereaved, to try and bring our experiences out of the closet, to give the non-bereaved the tools to connect with us, and to connect to others in grief.  My intention is to create community.

The stigma around grief and loss is such a burden.  The burden I feel carrying around this loss, and having to be the person that nobody wants to talk to, is the second greatest burden I have ever carried in my life.  So, I think, maybe if you knew who I am and how, in many ways, I am just like you - maybe then you would treat me like a human being.  Maybe if you understood that I also have dreams, and deeply love my family, and have both sad and silly in my life, and friends who both lift me up and disappoint me, maybe then you would relate to some aspect of me.  Maybe my little blog would give you some context to the experiences of other people you know in grief.  Maybe you would know that saying Maxie's name, that sharing with me how you think about him, and by telling me that although you've not lost a child yourself, you know how much I hurt - that you are doing way more for our connection to each other than you would be by just pretending he never existed.  Maybe you can do these things for someone else you know in grief.  Maybe.

Blogging creates another kind of community as well.  I have connected with other parents who are having my experience and the friends that I have made here are people with whom I can share how I really feel - through emails, phone calls and visits.  As raw as it sometimes seems I am willing to be on my blog, I have never really written some of my darkest thoughts.  If you haven't lost a child yourself, I've probably never even really told you the depths of it all.  You don't know all about the blame, the guilt and the anger.  You know some of it - but not all of it.  I can't share that stuff with anyone except for other parents like me.  They are the only ones that I know won't judge.  My blog is my address in the grief community.  It is where you can go to find me or send me a note or become my friend.

So, yes, I DO want people to read my blog.  I want people to find my space and pay attention to what I am saying.  I don't think I speak for all bereaved parents but my intentions are to put a face on my kind.....one of many faces.  I want you to know that we are here, that we live with great pain, lots of love, broken hearts and tremendous hope.  I want you to think of us as one of you - because we once were - because we still are.  I am not trying to hide out - my intention is for you to know who I am.  Maybe then you won't be so embarrassed of me.








Explaining

Just when you think you've got a handle on something - some new situation pops up and you are thrown for a loop.  This keeps happening to me.  The question that caused me the most anxiety after losing Maxie was, "how many children do you have?".  I never know how to answer and the truth is that I know that, in most cases, the person asking doesn't even care....they are just making conversation.  I used to feel sick to my stomach in any kind of new situation because I knew that the question would come up.  It came up a lot when I was pregnant with Mo.  Strangers were always asking me - at the supermarket (when I went, which wasn't often), at the physical therapists office, while out shopping.  People truly believe that a big pregnant stomach is grounds for conversation.

After Mo was born, I figured out ways to get around the question.  When I meet people that I know I'll never ever see again (like once at park not close to home with Mo, or in the checkout line at a store at the mall, or someplace anonymous), I just say that I have two boys.  I love saying it actually.  I beam with pride saying that I have two boys.  When they ask me how old my second son is, I tell whoever it is that he is three.  I love playing make believe like this.  I feel whole for the split second that I am saying the words.  I am explaining my life as it should be.

When I am responding to people that I might see again - like at my own grocery store or on the nearby playground, etc.... I say "I only have this guy at home" and look down at Mo.  I'm not even sure what it means, but it answers their question, shuts them up, and it doesn't feel like I am lying.  It's true.  I only have Mo at home right now.  Ugh.

Mo and I just started a Mommy and Me at the local synagogue's nursery school.  The idea of the class is to prepare toddlers for preschool - so that when they get there, they are already familiar with the place, the rules, and the rituals.  It should help Mo get comfortable with the place that he will likely go off to school in a couple of years.  It happens to be where we planned on sending Maxie to preschool as well.  My friend Limor's daughter goes there and loves it so we signed up together for this Mommy and me as her younger daughter is Mo's age.

Anyway, the first session was a few days ago and it was all going fine until we had to go around the circle and tell everyone a little bit about ourselves.  I just said, "I am Abby and this is Mo and we are happy to be here", or something like that.  The teacher/facilitator said, "Anything else?".  My mind went blank and I thought - no, nothing else, I can't tell these people yet.  "How many kids do you have?", she asked.  "Two", I said.  "How old is your other child?" she asked....and then came the long pause.  How weird people must think I am.  That I don't know my other child's age.  So, then I have to explain.  And, then I remember - this is my life.  I will never be the regular mom in the group.  I will always be "this" one.  And, frankly, I hate it.  I hate it so much, I could just die.  And, the truth is, everyone was nice.  A couple of people came up to me afterwards and gave me hugs.  I am sure that they can't imagine how terrible it really is - because nobody can.

I seem normal and functioning from the outside and I can't help but wonder if people who hear my story think I must just be heartless.  I lost my child but am still engaging in life.  I can't believe it myself.  What must they think?  I don't know.  The whole thing is just exhausting.  All of the time.  Just when I think I know what to say, I realize I don't.  I can hardly explain it to myself.  How can I be expected to explain it to anyone else?

Poles

I have this aversion to poles.  Yes, poles.  I used to ride the subway to work when I lived in Brooklyn and the metal pole that everyone would put their grubby hands on grossed me out beyond belief.  I had Purell at the ready so that I could totally disinfect as soon as I got off the train and I would be obsessively thinking about how soon I could Purell for the whole ride.  It's weird because I am not easily grossed out by germs.  I totally abide by the 5 second food falling on the floor rule and I will eat in restaurants with a C grade without a second thought.  Come to think of it, maybe it's not that I am just easy going about germs, it's just that I am extra unconcerned when it comes to food?  I guess I like eating....that's another post.

Despite this aversion to poles, I took my first pole dancing class on Sunday.  Yes, pole dancing.  My nanny bought me a certificate for my birthday.  It is her new obsession.  And, yes, it is funny to go pole dancing with your nanny.  It wasn't really until we started dancing on the poles that I remembered that poles totally gross me out.  Luckily there were spray bottles with alcohol and rags to wipe them down - but still, sweaty hands + metal pole = MAJOR gross out factor.

This is what I learned out about pole dancing:
- Strippers work way harder than you may even think for the money.
- The art of pole dancing is super technical and REALLY REALLY hard.  Unless you hold the pole just right, you will get stuck or fall on the floor.  I am covered in bruises.
- Pole dancing is a really hard workout - I am sore in a lot of places - mostly my abs, legs, arms and back.  So - ya.  I am sore everywhere.

I love dancing with Ted when we can because he is great at spins and dips and it is so much fun to get whipped around on the dance floor.  Pole dancing lets you do it to yourself.  I bet when you get good at it, it is really really fun.

I am not sure that it was entirely "for me" but the challenge was enough to get me back in the studio and trying again. Plus, I could probably stand to get a bit of my "sexy back".  Two pregnancies and deep grief can't be doing much for me in that department.  At the end of the class, all I could think about was getting in the bathroom so that I could wash the pole off my hands.  Being a germ-phobe is probably also not entirely sexy but whaddya gonna do?  I used to LOVE getting out of my comfort zone to try new things.  I don't really anymore.  I really love just staying in my comfort zone even though my comfort zone gets really boring.  New experiences do help to remind me that life can still be new and adventurous.  It can be.  Plus, you get to wear 6 inch stilletos - nothing boring about that.




Mo's Hat

Our friends Erika and Ian got Mo the cutest hat for his birthday in July.  Ted and I were so bummed that he would never wear it - he hates hats and always takes them immediately off his head. But then, a couple of weeks ago, he just grabbed it and put it on! We love how cute he looks in this dapper hat!





The last photo is of Mo with Harlan, Erika and Ian's baby.

By the way, Ted says Salma Hayek was never his celebrity crush. Maybe she was mine and I got confused. ;)

Fork

Mo got these awesome "construction" themed utensils from Auntie Beth and Cousin Sadie for Hanukkah.  This video is from his first day using a fork!  We were SO impressed!


He gets the speed eating from me.

Celebrity Crush

Who is your celebrity crush?  I've had a few over the years.  I don't think there is anything disloyal about celebrity crushes - that is what celebrities are there for, right?  My husband's is Salma Hayek, or it was the last time I checked.

My first celebrity crush was Ricky Schroeder.  I tore out the pictures of him from my Teen Beat magazines and taped them to my wall.  I even dressed up like him for Halloween once in grammar school - which basically meant I put my hair in a pony tail and wore an argyle sweater vest.  Somehow my parents got me to a party for some afterschool special he was in and my memory is that he "stole" my ice cream sundae.  I cannot tell you for sure if that is a true memory or a made up memory but whatever it was, it effectively ended my crush on Ricky.  I tend to think I was done with him but needed an out.

I had many celebrity crushes over the years too - most notably: Bono (or Larry Mullen Jr., depending on whether I felt like crushing on the underdog) in high school, Kurt Cobain in my college days, and Justin Timberlake in my twenties.  While I was working in San Francisco and New York to bring attention to the genocide in Darfur, my celebrity crush was John Prendergast.  Though he isn't really a "celebrity", he IS "famous" in the human rights world.  I was WAY more excited about meeting him at the Darfur rally in DC that I helped organize than I was to meet either George Clooney or Barak Obama, who were also there.  John Prendergast is dreamy - and I guess I am not the only one who thinks so - "they" say that he had a little fling with Angelina Jolie when he brought her to the Congo.  Lucky girl.

More recent crushes have been Eric Bana and Daniel Craig - not only because of their obvious appeal, but also because they have each played the part of historically based Jewish heroes.  For me, "Jewish" ups the appeal.  So does Latin.  Which brings me to me current celebrity crush:

Mando from Sesame Street.  Yes, this is the truth.  I mean, really, come on.  Mando is the very best human character on the show and so cute....and that hair!  Forget about it.  Plus, that voice!  Just have a listen: 


Ladies, am I right? Like BUTTER!
(Not sure why this video is not showing up in the mobile version of blogger- you'll just have to trust me!)

I think the celebrity crush is a pretty good indicator of the stage of life you are in.  We always described my Grandma Marilyn as super hip, in no small part because her celebrity crush was Jon Stewart (and her favorite movie was Spinal Tap - she really was the coolest).  My grandma was definitely in a more political stage of life when that crush developed.  I am clearly in a mommy stage of life, which is why my celebrity crush is a Sesame Street character.  Mando - rrrrrrrrrlllllllll! (I'm rolling my tongue to indicate his hotness).

Me vs. Grief

We all walk around with varying degrees of protective emotional gear on.  It is how we are able to watch the evening news, with its horrific stories of local tragedy, and then flip channels to watch the Real Housewives.  It is how we are able to drive past the man standing with the sign at the off ramp asking for money and not keep thinking about him blocks later.  It is also how we are able to get through the speedbumps in our own lives - the disappointments, the heartbreak, the feelings of inadequacy. 

I have always had a pretty thick protective gear - though I am not sure that I knew it.  I considered myself sensitive in that I had deep empathy for big things and my feeling were hurt easily.  But, the truth is that I was still able to live my life - which was full of friends and laughs and adventures.  When Max died, my protective gear completely disintegrated.  There was nothing protecting me and the world felt immediately unsafe, scary, dark and full of horror.

Slowly, the protective gear (or skin) has grown back.  It's still totally inadequate, but it helps me get through each day - some more easily than others.  This past week, it was totally stripped away again - and I am not completely sure why - but finding a moment of peace within my own brain was close to impossible.  It is so scary when it happens because there is no way of knowing when the pain will subside (because it never fully goes away - the best I can hope for is for it to lessen).  In the meantime, I spend A LOT of time trying to think of a way out.  That train of thought usually goes something like this: I need to know that Max's soul still lives and that we will be together again......I need to find a way to believe in a spiritual realm......I should find a new spiritual practice, philosophy, community........We need to move far away - like Australia, or India, or Croatia (Ya!  That's the ticket).......Maybe there is a book I haven't read yet that can give me some answers: about grief, about eternal life, about where my child is!!!!......Will I ever be happy again?.....Will Teddy?......Will I ever see Maxie again?.....How come some people have experiences that they see as messages from their loved ones and I don't?.......How come other people get pregnant and get to be excited and hopeful?....How come some other people get pregnant period? (No, I am not)......Why do I waste time feeling jealous of what other people have?.......What did I do to deserve this?......This isn't about me!  What did Maxie do?  NOTHING!!!!......I am so angry at god!.....Maybe there is no god!.....Then, there is probably no afterlife......There has to be a god!  I am sorry god.  I am sure there is a plan!.......and so on and so on and so on and so on.....until I am sick and dizzy and worn out and even more unhappy.   Sometimes this lasts for a day.  Sometimes it lasts for a week.  Right after Maxie died, it lasted a year!  A WHOLE year.  I feel fairly certain that it won't ever be like that again, but, I can't know for sure.

And then SNAP!  For no reason at all, the looping stops, a thin layer of protective skin grows back, and I am back to baseline me.  Baseline me is still sad but can appreciate the immediate things in life that make me happy on a day to day basis, without as much worry about anything past this very minute.  My snap happened yesterday - and I feel relief.  Like, my whole body (and mostly my poor brain) is taking a rest.  When I am going through the other stuff, I can hardly think of anything else.  The vet yesterday was kind of laughing at me because I couldn't remember parts of our last conversation, I couldn't remember the medications Jake is taking, and I couldn't even remember that he had had some pretty important blood work done a couple of months ago.  Jake is very important to me, but I just couldn't think.  I was in recovery mode and just trying to get through the appointment.

Before you think, "Well, she is just losing her mind", I want to tell you that I am not.  What I am feeling and going through is very common.  In the several online grief groups that I am a part of, I hear similar descriptions all of the time.  We are a very misunderstood bunch.  It isn't even depression (though that can be a part of it too) - it is grief.  And, oh my god, it seriously takes a very serious punch at me every few weeks and I am never sure whether I am going to survive through.

In the latest battle of Abby vs. Grief -  Abby wins.  Wish me luck for next time. 

Jake's post radiation check in

I took Jake to the vet today for a check in.  Three months ago, we did a week of radiation on the tumor in his mouth in hopes of stabilizing the growth.  Today, I learned that it hasn't grown over these past months, which is the best news that I could have hoped for.  The vet asked me how he is doing - I told him he seems great: lots of energy, loads of cuddles, happy all of the time, good appetite.  This is ALL good news.  I hope I can stay ahead of this tumor as it sounds like it is possible that he could have a few more good years in him - something I wasn't told on any of my previous visits.  I am keeping my fingers crossed because my Jakey is really something special.


Kicking myself

My New Years Resolution is to try and transcend the nonsense that occupies my mind and is peripheral to Maxie's death.  I am only seven days in and it is already proving to be incredibly hard.  That being said, I don't have space for it.  I really don't.  Especially because I have other goals I am working on that need my head to be in the game.  Under the best of circumstances, it is hard to not get caught up in all of the chatter that happens inside, outside and around each of us every single day.  My circumstances are not the best but that is why it is even more important for me to focus on the positive.  Sometimes I just need to give myself a little kick to get my focus back.  Let's consider this post my kick for the day.

Anonymous

I found myself stewing last night after reading an awful comment on the blog of a fellow grieving mother.  It was meant to be hurtful.  It was meant to make the blogger feel badly about herself.  It was meant to minimize the grief that this mother feels for her daughter and it's author was, OF COURSE, anonymous.  I have been on the receiving end of so many of those kinds of comments since I started writing my blog.  Every time I get one, it feels like I'm being punched in the face.  And, yes, I get it that our blogs are public, so people should be allowed to comment and say whatever they'd like.  After all, we are opening our lives to you.  BUT - honestly, who the hell targets a parent whose child has died to send such mean spirited commentary?  Just the absolute worst kind of person ever I have to imagine.  In my case, I usually have a pretty good idea who the anonymous commenter is.  First of all, there are ways to trace the comments, so they aren't really all that anonymous after all. I am SURE that anonymous is smart enough to recognize that, right? (NOT).  But, I also think that there are people who get off on kicking people who are struggling.  I think it brings them satisfaction to know that they pushed the knife in even further.  As an outside looking in on an anonymous comment on another person's blog, I have to say, those comments were really put in perspective for me.  The only person who looks like an a-hole is anonymous. 

No way out

A couple of mornings before Max stopped breathing.  I was out for a morning bike ride in Griffith Park. I had gone up into the hills and the chain came off my bike.  I really had never fixed my own chain before and didn't know what to do, but I knew I'd figure it out and be fine.  I pulled out my phone and found a video on youtube about how to fix the chain.  In less than five minutes, I was back on my bike and riding down the hill again.

Up until the morning we lost Max, everything in my life had been fixable. 

In the beginning I thought all of the time about how I would get myself out of this one.  How I could get back to the life I had, with my husband and brand new baby.  We had JUST started a family and we were so happy and so looking forward to our future.  And, just like that, he was gone.  Our family was no more.  I spent most of the day trying to figure out how could I get Max back. There had to be a way.  I discovered mediums and spiritual ideas about where the soul goes and have been trying to convince myself since then (still do) that Max is "somewhere" and that we will be together again.  The problem is that I want to be with him NOW and so I am caught between two worlds - the one where my last day on earth cannot come quick enough and the one where I have just started over again and am looking forward to seeing my Mo grow up and wondering who and what he will be.

I spend a LOT of time and energy trying to block out all of the negativity and grief from my thoughts because if I didn't work so hard, I'd just go be with Max, and I'd wait around for Mo and Ted to get there - because if I got there, I'd know there was a "there" there and that the two of them were coming.  As it is, I don't really know anything at all and it's the unknowing that kills me.  That, and the fact that there is no way out of this.  He will always be gone.  He will always be missing.  I will always have one child who died.  It's more than I can bear honestly. 

Expectations

This probably isn't the best day to write about this.  I feel like I should be writing something uplifting and full of hope with it being New Years Day and all, but this is what is on my mind this morning.

When my Grandpa Bill left my Grandma Marilyn for another woman, she was devastated.  They had three children, the youngest was just an infant.  She had been a stay at home mom, married to a handsome pianist who I suppose she was very much in love with.  Her heart was broken, she had to figure out how to make a living and balance three children.  It was really hard.  Eventually, she found a job working at Kaiser and met my Grandpa Jack, and they fell very much in love.  He was a well respected Pathologist with two children of his own and he was crazy about my grandmother.  And, although she really ended up with a beautiful life (I mean, she really really did), the cheating and the heartbreak and the strength that she had to muster to move forward broke a part of her.  And, every so often, she'd bring it up.  I think she wanted people to know that her happiness had not come easy. That she had struggled deceit, and heartache, and the challenges of being a single mother.  I never felt it was self indulgent of her to talk about that period of her life, even when a part of her still sounded sad.  I always just felt like she was honestly sharing her life with me and I admired that she'd been through an unconventional hardship (for her era) and made it through to another side.  I know there were some who felt she should stop telling and retelling the story because it all worked out fine - and that it was somehow insulting to her second husband and maybe to a certain extent that is true.  But, overall, she was scarred and I doubt she ever went to counseling or spoke to anyone with great insight about the situation.  She just buckled down and kept going.  Of course it scarred her.  I adored my grandma Marilyn - she was honest, and good, and kind, and generous, and nurturing.
 My Grandma Marilyn with my Auntie Al

My dad's mom felt sorry for herself her whole life and I could never actually figure out why.  She had a very smart and successful husband.  She had two beautiful children.  She lived in a nice house in a nice neighborhood.  She traveled all over the world.  Had she just decided at some point to be happy, she probably could have been, but I think it was easier for her to be angry.  She thrived off anger and drama.  She was constantly stirring the pot, pitting people against each other, looking for issues to be dramatic about.  I guess I loved her somehow, but she sucked the life out of me - not only whenever I saw her, but whenever I even just thought about her.  I used to pick her up to take her out to eat or to a movie and the whole time I'd have to deep breathe and clear my mind of her negativity.  In her mind, the whole world was against her.  It was exhausting.  She lived into her 90s.  I don't know how her anger and grief didn't kill her much earlier.  She was only happy with people she didn't know well.

My brother and I with Grandma Ann

I think about these women all of the time.  I do.  And, I am pretty sure my parents each worry that I will end up like their respective mothers.  They've hinted as much to me since Max died.  My mother worries that I will carry the loss of Max on my shoulders for the rest of my life and that even if life looks beautiful from the outside for me again someday, I will still be crying over my child.  She is right.  I will.  And, I know there will always be people that will say that I should be over it, and that I should count my blessings, and that life turned out lovely for me (assuming it does).  That is ok.  The fact is my grief isn't all about me. It's about Max- and the life he won't get.  They can say whatever they want anyway.  They haven't lived through what I am living through.  They don't know how much strength it takes to even imagine a lovely life when your child dies.  They don't believe my struggle and I can't, nor do I need, to try and convince them.  But, I will share Max forever, because I love him and because I believe his life was important.  The truth is that people can move forward and still have deep scars, like my grandma Marilyn did.  That essentially sums up the human experience.  We get knocked down, we lie there for a while (sometimes a minute, sometimes a year), we get up, we move forward and then we get knocked down again.  It never bothered me to hear my grandmother say her heart had been broken - because it was the truth. And, by the way, when my first boyfriend cheated on me, she is the one I went to about it and she understood like nobody else did.  I'd be happy to end up like her. 

My father, I am sure - worries that I will end up like his mother: Bitter, mean, entitled.  When I first lost Max, this was a real possibility - I could have ended up like her.  Though, I'd be quick to point out that unlike her, something horrible happened in my life - in fact, to the most important person in my life.  She hadn't lost anyone close that she loved or been left by someone she trusted or had anything bad really happen to her.  I've always wondered whether her husband was very fond of her, but honestly, I am sure he wasn't.  She was really a difficult person.  And, who knows why?  Maybe there was some reason that she never shared with us.  Regardless, I have been very aware of who she was and how much I don't want to be like her.  She never expressed gratitude for what she had and the truth is that her life was full of abundance.  She could be generous, but rarely with warmth and love. She was mostly miserable to be around, and I guess I should feel bad saying it because grandmothers are supposed to be sweet and warm and lovely - but mine just wasn't and that is ok.  In fact, I truly believe that if I had any kind of understanding of what had made her the way she was, perhaps I would have felt some compassion.  But, as it was, I didn't.  

I've been thinking about these two women and how they have shaped my life and more importantly, my parents.  I know that both of my parents have felt disappointed at various points that I haven't been able to be stronger in the last two years.  They have wanted me to be the bigger person in certain instances and encouraged me to put one foot in front of the other when that felt impossible.  I think my mother and I have mostly reached a place of understanding, where she knows I am doing the best I can.  I also think my dad might see that but I can't be sure.  I wonder if they notice how much strength I actually have had to muster to keep going - to have another child, to take care of him and make sure he feels loved, to nurture my marriage, to plan for more children, to keep my job, to find ways of coping and even enjoying life.  I worry that they are more worried about my becoming one of their mothers than they are about my becoming my "new me".  And, I hope that my parents can see the difference between having lost Max and the experiences of their mothers.  They have each spent large portions of their lives listening to women who felt sorry for themselves on a certain level, and to have me in that same place probably feels familiar and scary.  My feeling sorry for myself is a trigger for them.  I hope that eventually, they will fully recognize how natural it is to feel sorry for oneself when a child dies.  I think they feel it too but they are also afraid of becoming their mothers, so they mostly "buck up".  I hope that one day they can feel proud of how far we've come since Maxie stopped breathing.  Perhaps I am being too generous with myself but I believe that though my life has been influenced by both of these women - neither one of them is me.  And, the two of them couldn't have been more different.  My life, my experience, my love, my loss - it's different than either of them and so am I.



Feeding Grandma

This is the last scene I had to share from grandma's house.  He's a funny baby!

However your 2013 went, I hope that 2014 is much kinder!

Natural

One day, his fans will be telling his story:

Mo Leviss was visiting his grandma and her boyfriend, Ken, back in December of  '13, when they stumbled upon some neighbors with a toddler on a neighborhood walk.  The neighbors invited them inside and they saw that the kid had a drum kit.  Mo just walked right over, picked up the sticks and started playing as if it was something he had been born knowing how to do.  The neighbors stared on in amazement and wondered how Mo knew instinctively knew how to play at 17 months old.

Mo's grandma and K-pa knew right then what they had to do.  They ran to Walgreens and bought the last Teenage Mutant Ninja Turtles toddler drum set and brought it back to their house.  The rest is history!


Oooooooo Vegas!!

Ted and I both LOVE Las Vegas. We love gambling and free drinks and people-watching.  We got a really good deal on a suite at the Hard Rock and came here for the night yesterday for Ted's birthday. It's our second whole night away from Mo! He's staying at grandmas house and from the videos we've been sent today, it looks like he is having a blast! (Of course!!)




Ted and I decided to start our winning as soon as we got here and decided to head out to our old favorite casino - O'Sheas!  Oh ya! It was cheap and grungy.  Only, we got in the cab and found out that O'Sheas is no longer...  We were momentarily confused and thrown off course. The taxi driver recommended some place that he described as new and trendy that he thought we'd like. "No!", we said, "we like old and dirty!"   "Oh!  Then, you gotta go to Ellis Island", he said, "it's MY spot! Where all of the taxi drivers hang out".  Pulling up, we realized we'd been sent to the right place!! Very unglamorous! Just like we like it!


I rolled the best game I've ever rolled. When we left, I was feeling very proud of myself. We somehow found ourselves next at Planet Hollywood where I promptly lost everything I'd made AND simultaneously became Teds kryptonite, causing him to craps out whenever I made my approach. So I sat down to play an hour of video poker at the bar while Ted rolled 45 minutes of winning numbers. His winning streak ended as soon as I got close but not before winning everyone at his table hundreds and even thousands of dollars. Ted walked away a cool $600+ richer.  Good thing too because dinner was not cheap!

Ted and I, like any good Top Chef fans would, made reservations at Tom Coliccios's Craftsteak at the MGM. Pretty delicious and definitely overpriced! My night was MADE when Anthony Bourdain showed up with his wife and sat down two tables away from us.  I am never excited about celebrities but I seriously considered telling this man how much watching No Reservations while I was in the pit of hell contributed to my sanity. His gritty unapologetic love of travel, food, booze, tabacco and late nights was a reminder of all that is good and lovely in this life.  Oh Anthony - how I love thee!  He was clearly there for the fight last night (between someone named Silva and another guy) with his Brazilian boxer wife. I recognized her from the episode when they went to Brazil for one of her matches.  She trained, grunted and sweat the whole time they were there, while he ate roasted pork, guzzled cocktails and lazed out on the beaches of Ipanema. Heaven.


On the way back to our hotel,
we chatted with our taxi driver. I asked him if he'd ever been to the Ellis Island Casino and bar.  "That's my spot!", he replied. Somehow I knew that's the answer we'd get. Consider yourself now in know about where the Vegas taxi drivers hangout. Just In case you'd been wondering......

In my pre-mom days, I would have set up at some table right after dinner and played until the wee hours but last night I found myself more excited about my fluffy white hotel bed and TV.  That's how I found myself exactly here before 10:30 pm:


Today we start the day $700 richer (Teds winning streak continued on after I went to sleep - he's younger than me. He can still stay up late.) Which is why I'm dragging myself down to the spa this morning while he goes off to watch football.  Could this trip be any more perfect?

I was thinking on the way into town yesterday how at this time last year, I couldn't have even imagined this being possible. I was hugely debating even attending a New Years Eve party in CT and felt totally on edge just thinking about being in a "good time" situation. It's amazing the progress we've made. Simply amazing. Having fun doesn't always make me feel guilty anymore. And it doesn't mean at all that Max isn't still in every thought I have .... all of the time. 

Resemblance

When Max was born, he looked like Ted. Later on though, he morphed into me.....at least, that is what my brother likes to say.  When Mo was born, he looked like both of us (mostly like Max) and morphed into Ted.  My mom still insists that Mo looks like a mini-me.  Then, the other day she sent me this photo with the subject line: "Can you see the resemblance?"



Come on!  You've gotta admit.  Kid looks a lot like I did as a kid, no?  He's still a mini-Ted.  Just nice to see a little of myself in there too.




12.27.13

Happy Birthday to the WORLD'S BEST DADDY AND HUSBAND!  
We love you Teddy!




In our room

Mo still sleeps in our room.  I meant to move him ages ago, but it just didn't happen.  I probably need to move him soon or he is going to be like, "Why are you putting me to sleep in the playroom instead of in the big cozy room with you guys?"  I am confident enough in my sleep training skills that I think I could retrain him but I wouldn't bet much on it.  I think it is time........soon.

Only, I just can't imagine not having him in here with us.  I check on him all throughout the night.  I love waking up to his squeaky cries (even when they start at 4:30 am like they did today).  I love not having to move much to bring him into bed with us.  And, I don't know - for no good reason at all, I am nervous to have him sleep in his own room.  Max started sleeping in there at four months!  Mo is 17 months old!

Part of me wonders if he might sleep in a little later if he was in his own room (though we are very quiet and in fact, totally asleep when he wakes up in the morning).  That would be really nice actually.  I imagine sleeping in until the luxurious late hour of six am and I already feel all excited and well rested!  Though I know we'd have at least a few days of night long wakings while he got used to his new space.

It's time isn't it?  Or, should I keep him in here with us just a *little* bit longer?




Christmas

I'm lucky - We don't celebrate Christmas over here.  Because as far as I can tell, it is the hardest day of the year (outside of birthdays and anniversaries) for parents who've lost a child. I can understand why. The whole season is full of "cheer" and children, their innocence and happiness is the prime focus.

Knowing that I'm Jewish, people have asked me for my whole life at this time of year why I am not "getting into the Christmas spirit".  I've always found it a little more than annoying.  I feel like my Jewishness should be an appropriate tip off.  When I was working as a real estate agent, very briefly, I can remember being in the office with another agent on a Saturday who was dressed in her Christmas sweater, with Christmas earrings, and Christmas socks. She was greeting all of the walk-in potentials by calling out "Ho Ho Ho", in her silliest Santa voice.  And while I could appreciate her enthusiasm, for me it was just another Saturday.  At some point late in the afternoon she expressed her disappointment in my lack of Christmas spirit. I thought it was pretty ignorant for her to not understand how being Jewish kind of took me out of the whole Christmas thing.
Looking back and knowing what I know today, her offense was pretty minor...considering the stories I hear from other bereaved parents.  A woman who lost her young daughter only several months ago was greeted at work by a Christmas sweater wearer who asked her where her Christmas spirit was.  A Holiday card sent to another bereaved parent with the message, "We hope this is your Merriest Christmas yet!!". Fat chance! Loads of Christmas greetings with mention of everyone in the family except for the deceased child - thrown straight in the trash.  Though Christmas cards just about killed me in the year following Maxie's death, they don't anymore. We like them. But we don't have a display on our mantel and we definitely aren't sending out cards of our own. How to sign them? Which photos to put on them? Why bother anyway? We aren't Christian!  

What I'm saying here is that Christmas is hard for those who celebrated, or couldn't wait to celebrate it, with their children. It's more than hard actually. And even though I am lucky not to have to deal with it at all - I get it. I'm so sorry you have to face this day without your beloved babies. This hurdle will be over soon.  And for those of you in the Christmas spirit - Merry Christmas. Just know that we are counting on you to carry the spirit for us, because we don't have it ourselves...for a number of reasons.  XOXO

Newsfeed

"To compare is to despair" is what our grief counselor told us over and over again in our weekly sessions.  Ted likes to repeat it to me when I am feeling especially full of despair.  I like to say "To compare is to be human", but I think my phrase misses the point somewhat.  The point of the grief counselors saying is that to find true happiness, you must work to transcend normal human feelings about life.  Of course to compare is human - but it can also cause great angst, which is where I find myself more and more these days.  And, once again, the source of said comparing and angst is Facebook.  I think I really hate it.

A few weeks ago, I was hanging out with my niece at our family Hanukkah party.  We were talking about the amazing goal she scored that was caught on video.  We looked at it on her mother's Facebook page together on my iphone .  If I remember correctly, there were 63 likes.  I pointed that out to her and she was over the moon.  She was thrilled to know that 63 people had seen her game winning goal.  She felt like a mini-celebrity.  And, then I made a HUGE mistake.  I told her that I remembered seeing that her dad had posted it on his page too.  "Let's look at how many likes you got on his page," I said - like a GIGANTIC effing dummy.  It never occurred to me that we would find 5 likes.  Who knows why people "like" what they like?  Honestly.  But, I was thinking it might have to do with the fact that he lives on the other side of the country and perhaps his friends just don't know my niece like they know his other children.  Right below her goal video was a picture of his other daughter and it had many, many likes....I can't remember how many.  The excitement of the first 63 likes we saw was gone.  She was momentarily crushed.  Ugh.  I felt AWFUL.  I scrolled down quickly, in a panic really, to see if there were any pictures of my sweet and beautiful niece on her daddy's page that had a lot of likes and luckily, we found one.  "There," I said, "I think people in New York are just too busy to watch videos.  They really like pictures better".  Stupid save - but a save nonetheless.  It helps that she is six so whatever I say, she just takes as a fact.  And, anyway, maybe I was right.

My mom lost her beautiful dog very suddenly last week and composed a very poignant farewell, complete with photos for him on Facebook.  I was scrolling through and noticed that there were over 73 comments on her FB eulogy for Ben.  Many of the comments said stuff like "It's so sad when we lose our babies".  I felt sick to my stomach, though OF COURSE I know what they mean, because our dogs become part of our family and it is so so awful and sad.  I only have to think about "Marley and Me" to start bawling my eyes out.  But, like a complete idiot and glutton for punishment, I looked back to see what people wrote about Max.  Hardly anything, which is actually appropriate in some ways I suppose.  Facebook isn't exactly a sacred space in which to truly express a heartfelt condolence to someone on the loss of their only grandchild.  Intellectually, I know this, but it still hurts my heart and I don't know why.

Even though I do actually know why.  I worry that people breezed too easily over Maxie's death.  I worry that they don't recognize what I great loss to the world his death is.  I worry that they don't care.  

I find myself comparing in lots of other ways too.  I repost a particularly poignant quote from The Compassionate Friends and then scroll through my newsfeed to find someone else bragging about their kids fun weekend and I compare - "Why her and not me?", I think.  I can't help it.  I see posts that read, "This is officially the worst morning of my life", and I am filled with jealousy and unexplainable sickness.  I see updates that are meant to be uplifting that just make me feel inadequate.  And on and on it goes.  And, still, I like seeing what is going on.  And, it does ALL make me crazy.  But, I continue to compare and it throws me into a despair.  What's a girl to do?

The trick is to shut off that part of me that wonders "WHY ME?  WHY MAX?  WHY US?"  but it is so so so hard - because I am a human being and this is what we do.  The same disappointment that I saw in my niece's eyes when she found only 5 likes on her posted goal is one that I feel over and over and over again each day - as I write this blog and I know it isn't being read by many of the people who matter most, as I read the Facebook newsfeed and know that spilled coffee and a flat tire will never ever be my worst morning ever again, as I see the photos of everyone's happy families and know that mine will always be incomplete.  Perhaps recognizing this flaw is the first step in correcting it.  Jealousy, envy, anger - they are all so human - but also so toxic and they hurt me so much. 

Approaching the new year, that is what I am looking to do - transcend.  Last year, I kept my New Years resolution pretty simple:  take better care of my hands.  I think I did ok.  I wasn't diligent enough with wearing gloves while doing the dishes or lotioning after every hand wash, but I did those things a whole lot more than I ever had before and that is progress.  This year I will try to remember that to compare is to despair and to remember not to read too much into stuff.  This is a MUCH bigger challenge for me.  I have always been very sensitive and take things much too personally - an incredibly bad combination for a bereaved parent.  The fact is, I have enough to despair about as it is.  I am going into this knowing that I will slip, that I will read too much into something unrelated to our situation, that I will compare myself to others who seem to have it so much easier than we do, that I will despair at the inequity that I perceive.  I forgive myself for being human, because I believe that it is also important to be kind and go easy on myself.  I know that many other grievers feel the same way I do and this time of year is especially hard.  Be kind to yourselves and maybe, every few days, take a break from that Facebook newsfeed.  I promise it isn't going anywhere.

Slide



Different

Let me tell you why losing a child IS different than other kinds of losses.  Though I really cannot imagine that you wouldn't just know this in your heart.

You love your child more than you love anyone else.  You just do.  No matter how much you love your parents or your spouse or your pets or your friends.  You love your child more.  It's unconditional in every sense.  And, the greatest pleasure in your life is watching that child develop - a personality, a sense of humor, new skills, their own identity, their own ideas....  It is better than anything in this world.

You EXPECT to your child to outlive you.  You don't know if you will outlive your spouse, you know you will probably outlive your pet, you try to prepare yourself for the day you will lose your parents (though I suspect there is no amount of preparation that is enough - no amount of time that is enough - that the hurt will knock you off your feet no matter how prepared you think you might be).....but you still expect to outlive them.  You do.

And because your whole life happiness depends, in part, on theirs.  My dad always says that you can only be as happy as your most unhappy child.  Even if you are having the time of your life, if your child is unhappy or sick, your mind will be preoccupied with that.  It is biological.  I am guessing that my parents at times feel a little torn when they are truly enjoying themselves, knowing how unhappy I am.  It is built in to care for your children more than you care for yourself.  At least, that is how Ted and I feel.  Maxie and Mo are the most important things in our lives.  Nothing compares.

And so when your child dies - not only is there the missing, and the grief....there is also disbelief - because it wasn't supposed to be this way.  And, if you are only as happy as your most unhappy child - how can you be happy when that child is dead?  Honestly - that is the heart of the matter.  How can I be happy when he can't even experience happiness?  It's not right.

When Max was born, I remember feeling this sense of foreverness.  We would be together, in some sense, for the rest of my life.  It was a sense of forever that is not entirely unlike a marriage except for with a whole lot more certainty.  That it ended so quickly, that my love for him only happens now in my heart, that I cannot hug him and kiss him and watch him grow.  It is devastating.  ALL OF THE TIME.  And, whenever I feel like I've made just a little bit of peace with the situation, I realize that there is no peace.  It is just emptiness.  Forever.  I guess I can at least count on that.

I am aching for this little monkey.  More than words can ever express.






Ben

Did I ever mention that I lived at home briefly as an adult?  When I was 32, I moved from New York back to Los Angeles and lived with my mother.  My plan was to save enough to buy a place of my own, but instead I met Ted and about 8 months later, we moved in together.  Living at home also meant that my pets were living there too.  My mom became very attached to Jakey and when we left, she decided she needed a Goldendoodle too.  Mom got Ben on sale just a few months later.  The gold pups went like hotcakes but the black goldendoodle was $500 off.

 This was the first night I met Benny

I liked to joke that Ben was my nemesis.  He was very excited and jumpy whenever we'd come over.  He also liked to get right in my babies faces.  Tremendously excited for a while until he'd calm down - then he was a cuddler.  Goldendoodles are VERY cuddly.

The last few times I've been over there, Ben has been REALLY mellow.  SO unlike himself.  My mom has been pushing her vet to figure out what is going on.  A few days ago, she took him to our animal acupuncturist veterinarian, who took a biopsy.  Mom called me in tears last night to tell me that Ben had lymphoma.  She sounded incredibly distraught.  My mom adores her dogs.  She has 4.  Big ones.

My mom with her dogs

She asked for the name of the vet who did Jake's radiation and I texted it over to her.  I hung up feeling worried.  A few hours later, Ben died.  Without warning really.  One minute she was trying to feed him under the table, the next minute, he was gone.

My mom LOVED Ben!  Two years ago, she lost her dog Stella - a sassy, athletic standard poodle.  All of this on the heels of losing her only grandchild (which obviously is in a completely different category) - but, it's just too much.  These years have been tough.

Despite his former nemesis status, I will miss Ben.  I will mostly miss my mom's babying him.  He could do no wrong in her eyes - whether he was dragging little cousins around the house by the arm with his teeth, or sniffing the neighbors crotch - he was a perfect angel in her eyes.

Ben - 2007 - 2013



The Cartoon says it Better

One of the most awful things that I experienced after losing Maxie was going back to my office for the first time.  I've only been back twice since then....in two and a half years.  I am not sure why, but my colleagues were told to pretend that nothing happened, to treat me as they had every day until Maxie died.  Nobody mentioned a thing.  People came into my office to talk about upcoming events and things I'd missed while I was out.  There were no "We are here for you"s or "I'm so sorry"s.  Nothing at all.  I felt so alone and all I could think for months afterwards was - "Is this how it is going to be?  Do I have to spend the rest of my life pretending that he was never here?"  I'd honestly rather die than pretend Maxie never lived.  Being his mother is something that I miss deep deep deep in my soul and to deny that it ever happened to save other people from feeling uncomfortable was more than I could bear.  I still think about that experience at my work every day.  I worry that other parents will have to feel that.  I envy parents who feel uplifted by their community and workplace.  Thank goodness - I have a boss who saved my life in some ways by getting into the dark hole with me, listening to my cries and truly walking parts of this journey with me.  I'm not sure what would have happened without him. 

Today is my 1000th blog post and I realized yesterday, after being sent this short video, that I have used 1,000,000 words to say what this cartoon says in less than 3 minutes.  (Except for that the cartoon can't tell you all about my beautiful, wonderful, spectacular baby boys or my amazing husband).  I posted it on Facebook yesterday so forgive me for the repeat if you already saw it there.

Most of the people in my life have stayed comfortably in the "sympathy zone" and that is fine.  I have known that they cared but that they couldn't connect to me and that we probably won't be able to connect again for a long time.  It has been the empaths that have saved me though....and I mean, REALLY saved me.  Maxie's death has been the most isolating, lonely experience I could have ever imagined.  It's been the human contact and connections that have gotten me through. 


Fix it

Ted was away on a ski trip this past weekend so Mo and I were on our own. We packed our weekend with activities. We met my mom at Griffith Park on Saturday and visited Shane's Inspiration, the Merry Go Round and the Southern Train Ride. We spent a lot of time on Sunday playing on our deck outside. And- I even went out on Saturday night while our nanny watched Mo. That was a big one for me for a number of reasons - out without Ted, out at all, Mo with a "babysitter" (yes, she's his nanny but she's never babysat him at night), I stayed out late, I went to a party where I didn't know most of the people there.  I recognize these things are completely non threatening to an average person but I'm not myself anymore.  I'm feeling socially awkward, even around people who I've known for most of my life...and I'm not used to being away from Mo.  Anyway- it was fun. I'm glad I got out of my comfort zone for the night.

That being said, I was happy to get back in it on Sunday morning.  Here are some videos from the weekend. Without Teddy around, I worried there would be nobody to fix stuff around the house.  Luckily Mo is his Daddy's boy!!!!